RareCan

RareCan is a unique company specialising in providing support to people with rare cancers. Their mission is centred on connecting individuals to various resources and research opportunities designed to enhance the understanding, management and treatment of rare cancers. The company believes that people living with rare cancers have the right to live better and healthier lives, and therefore, focuses on increasing treatment options for rare cancer patients.

Established by a team of dedicated founders, including Simon Allocca, Andy Hall, Claire Heron, and Piers Kotting, RareCan offers a variety of services and tools designed to empower individuals diagnosed with rare cancer. To leverage these tools, users only need to join the community and provide relevant information about their cancer. The team at RareCan then engages this information to provide personalised tools, support, and identify potential research opportunities. Their tools range from a research platform linking patients to researchers to a knowledge library that provides specific information about unique cancer types. The RareCan BioResource, developed in collaboration with the NHS Research Ethics Committee and the RVI Newcastle, allows members to provide consent for their samples to be used in research.

The effectiveness and value of RareCan are emphasized by the testimonies of its members, whose lives have been impacted positively through the resources and support they provide. Their partners within the healthcare system further underscore the comprehensive network that RareCan has created. Joining RareCan can be advantageous for those dealing with rare cancers as it enables them to have access to a wide range of resources, research possibilities, and a community of individuals in a similar situation. The foundation of RareCan on the principles of understanding, empowerment and progress underscores their commitment to improving the lives and outcomes of people with rare cancers.

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